Posterous theme by Cory Watilo

The Sixty Fifth World Health Assembly Adopts Resolution Moved by India on Mental Health

Press Information Bureau English Releases

Ministry of Health and Family Welfare
23-May, 2012

India's leadership role in promoting the global debate on the need for urgent national action for the promotion of mental health was acknowledged by the World Health Organization at the ongoing 65th World Health Assembly. An important resolution calling on Member-states and the WHO to develop an action plan was moved by India and received warm support before being approved. 

The Government of India has been separately working on strengthening interventions in the 12th Plan for the care of persons with mental illness, including emphasis on family and community care and training of health and community workers, and short and long stay homes. 

Government has begun a major exercise to develop a mental health policy for the country and also expects to shortly introduce new legislation to replace the Mental Health Act, 1987, to bring India into conformity with international commitments to protect the rights of persons with mental illness.

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SBS/sk 
(Release ID :84420)

The MCI should make mental health a subject in MBBS curriculum

21-May-2012

INTERVIEW/P.C. Sharma, member, National Human Rights Commission

P.C. Sharma, member, National Human Rights Commission

You have been working closely with the subject of mental health care. What has been your experience?

It is disheartening that in a country of more than one billion people, there are only 43 mental hospitals. Also, only three or four institutions have the facilities for research and development.

How can we improve the situation?

There is a worldwide trend in favour of community-based treatment of the mentally ill. It helps remove stigma. The experiment being done at Khunti in Jharkhand should be replicated elsewhere. 

Do you think the national budget for mental health care is sufficient?                

It is unfortunate that the overall budget allocation on health care in India has been most inadequate. But it is heartening that the Prime Minister has promised more allocations.

How can we overcome the shortage of psychiatrists in India?

The Medical Council of India should make mental health a separate subject in the MBBS curriculum. Also, like in other fields, research and development should be encouraged in psychiatry.

Do we have a mental health policy?

No. The need to have a mental health policy is more today than ever, as it would help review the current situation and prepare a road map to fill the gaps in the areas of human resources, drugs and rehabilitation. In the light of pathetic conditions of mental hospitals and societal stigma, the current situation demands a mental health-specific policy.

Damned lives and statistics

21-May-2012

GUNJAN SHARMA

   
 
It is a hot, humid afternoon at Lumbini Park Mental Hospital in Kolkata. About 30 male patients in tattered clothes huddle in a dormitory. The stench from the lavatory  next to it is nauseating. On the next floor, two female patients lie sprawled on the narrow corridor outside a female dormitory. 

Things are no different at another state-run hospital in the city, Pavlov Mental Hospital, where about 400 patients share 250 beds. Patients at a severe stage of mental illness are locked up in 4x5ft cells, with an Indian-style closet—they eat sitting next to it. And to kill body lice, says a hospital employee, patients are stripped and sprayed with insecticides meant to kill cockroaches.

The pathetic and horrible condition is compounded by inhumanity: “The funds that come to the hospital for food, clothing and mattresses are siphoned off by the officials. They even take home the bedspreads and curtains,” alleges an employee.

The hospital looks nice from the outside, but it has no rehabilitation facilities to engage patients in vocational training. As a result, even patients who become stable lose their cognitive abilities and succumb to negative symptoms such as withdrawal, lack of concentration, reduced productivity and, eventually, lack of will to live.  

“A lot of cosmetic measures have been taken in the past two years to improve the overall look of the compound,” says an official, “but the patients still live in inhuman conditions.”

Mental Hospital, Varanasi, was conceived as a jail in 1809 for criminals with mental illness. Today, only 54 of 290 patients are prisoners, yet the same old colonial rules are followed. 

Patients live in stinking barracks. The cells have no fans, even as the temperature soars over 40 degrees Celsius. Patients are forced to sleep on the dirty floor, as there are no beds in most wards. And thanks to the strict adherence to the old ‘jail manual', patients spend over 17 hours a day in the lockup, without any recreational facilities. 
The ‘jail' authorities thrash the patients if they demand basic facilities, says a patient in the male ward. “We don't even get sufficient food,” he says. 

The hospital has about 300 in-patients and handles as many out-patients a day, but has just two psychiatrists. No nurse, no clinical psychologist, no occupational therapist, no social worker.

“For the 24 years that I have been here, nothing has been done to improve the living conditions of the patients,” says a senior doctor at the hospital.
Be it West Bengal, Madhya Pradesh, Uttar Pradesh or Maharashtra, most state-run mental hospitals are in a deplorable state. According to the National Human Rights Commission, there are only 43 government mental hospitals in India, of which hardly half a dozen are in a “livable” condition.

“The NHRC was asked to report on the condition of mental hospitals in the 90s. We brought out our first report in 1999; the condition of most mental hospitals was shocking. Even after a decade, it remains the same,” says P.C. Sharma, member, NHRC. “It shows the government's attitude towards the mental health care in the country.” 

In fact, the NHRC's reports in 1999 and 2011 look almost identical. Most hospitals lacked, and still lack, even clean water and ventilation. Many hospital buildings are in a dilapidated state, as they were colonial structures, mostly jails. 

Take the case of Bangur Institute of Psychiatry, Kolkata. Patients here still live in the same dark, damp, dirty jail cells. Forget rehab activities for the patients. “If a bulb blows, it takes five days to get it replaced,” says a voluntary psychologist at the hospital. 

Posing as the daughter of a patient, I ask this social worker whether I should admit him in the hospital. “It is nothing more than a jail,” he says. “It will only deteriorate your father's condition; it is not for people like you.”

In its 2011 report on the Institute of Psychiatry, Kolkata, NHRC's then special rapporteur Dr Lakshimidhar Mishra writes: “Around 12 noon I inspected the dining hall of the Institute of Psychiatry. About 10 in-patients were taking lunch which comprised about 100g of rice, 50g of dal (mostly watery), a potato and mixed vegetable curry and a small piece of fish. There was no salad and no other fried vegetable, spinach or fruit.”  The nutritive value of the aforesaid meal is 1,500 cal; a normal human being needs at least 2,500 cal.

Mental Hospital, Indore, hardly looks like a hospital from the outside. The male ward, with a dozen patients, is dusty. The window panes are broken. Lavatories, as expected, are stinking, and many of them in the female wards do not have doors.

In the book Mental Health Care and Human Rights released in 2008, the NHRC notes, “Mental Hospital, Indore, is in a highly deplorable state in almost all aspects of human care. Evidence of chaining patients, clinical abuse and active neglect are seen.” Things are almost the same even today. Quite understandably, hospital superintendent Dr Ramgulam Razdan bars me from talking to patients and staff.

“The new building is under construction and we will shift all the patients in three to four months,” he says. “This building had a thatched roof when I took take charge in 1998. Lack of political will delays reforms.” 

Can we afford the delay? 

At least 10 crore people suffer from mental illness in India. About one crore need hospitalisation. There are just 43 government mental hospitals, most of them in a pitiable condition. There are only 4,000 psychiatrists in the country; 70 per cent of them practise in private hospitals in urban areas. 

There is a severe shortage of paramedics, too. In 2008, according to an NHRC report, a single psychiatrist was found manning the 331-bed hospital in Varanasi. There were no sanctioned posts of general medicine officer, clinical psychologist, psychiatry social worker, occupational therapist, dietician and nurses. Four years down the line, all that the hospital has got is an additional psychiatrist.

Furthermore, over 30 per cent posts of psychiatric nurses are lying vacant in most mental hospitals across the country. Besides, there is a severe shortage of grade D staff, who are responsible for the day-to-day care of the hospitals and patients. And at most of these hospitals, electroconvulsive therapy is still given without anaesthesia, as there are no anaesthetists available.

“The problem,” Mishra says, “is in the attitude of authorities managing these hospitals. Most of the hospitals in India are not managed by psychiatrists. So they don't understand the complexities of mental health care.”

For instance, Mental Hospital, Varanasi, is managed by Dr K.K. Singh, an ENT surgeon. There are physicians and even gynaecologists who are in charge of mental hospitals. “These doctors don't understand the intricacies of a psychiatric illnesses and the comprehensive care the patients require,” says a psychiatrist working in a state-run mental hospital in UP.

Calculation gone wrong

In 2010-11, the Central budget allocation for the mental health programme was just Rs103 crore—less than 1 per cent of the total health expenditure. According to the World Health Organisation, about 10 per cent of any country's population suffers from some form of psychiatric disorder at any given time. And one in every four persons suffers from some mental disorder at some point of time in life.

Even if we consider that a conservative 7 per cent of India's population suffers from some mental disorder at a given time, it amounts to about 8 crore people. “That means we have a budget of Rs13 per mentally-ill patient per year, when at least Rs500 per patient per month is required to provide at least basic medicines, food and shelter,” says Tapas Ray, founder of Sevac, a Kolkata-based NGO.

A senior officer, who has worked in the Mental Health Cell of the Union ministry of health and family welfare, says mental health has never been a priority of the government. The District Mental Health Programme, introduced in 1982, remained on paper till 1996, when the government finally launched it in 27 districts across the country with a budget of Rs27 crore. Today, the programme has managed to cover just 123 districts, with 40 per cent posts lying vacant. 

The problem is not shortage of funds, says a senior ministry official; there are times when the states return the money, as they couldn't utilise it, he adds. “There should be a close monitoring of mental hospitals. But unfortunately, there is no manpower to do even that. We do have the Central Mental Health Authority, but its members have not met for the past three years. There is similar official apathy at the state level, too.”

The Comptroller and Auditor-General slammed the previous V.S. Achuthanandan government in Kerala for not utilising Rs4.07 crore of the alloted Rs9.98 crore. That, in a state where prevalence of mental disorders is almost three times the national average.

Caught between fate and faith

With the medical system in a mess and awareness about mental disorders lacking, faith healers and quacks are making hay. According to a study by Dr Shiv Gautam, former superintendent of Mental Hospital, Jaipur, 68 per cent of mentally ill people are taken to faith healers before a psychiatrist. 

“The reason, besides superstition, is that most general medicine doctors fail to diagnose psychiatric illness,” says Gautam. Apparently, psychiatry is not a separate subject in the MBBS curriculum, and there are just 11-12 lectures on the stream. 

“Moreover, there are hardly 250 postgraduation seats in psychiatry, and most of the pass-outs opt for jobs abroad,” says Dr Sunil Mittal, director, Cosmos Institute of Mental Health and Behavioural Sciences, Delhi. “In fact, there are more Indian psychiatrists in the US than in India.” 

Many patients initially consult a general physician during the onset of a mental disorder, and if that doctor fails to diagnose the problem correctly, generally the next option is faith healing, which, professionals say, is hogwash. “A mentally ill patient displays symptoms which superstitious people believe are paranormal,” says Gautam. “Such patients are tortured, chained and used for extracting money from their families.”

Take the case of Hema. Until a few months ago, the postgraduate in English used to call herself Mrs Sonu Nigam, assuming to be the Bollywood singer's wife. A clear case of schizophrenia. But, her family took her to Datar Sharif dargah near Ahmedabad. They believed an evil spirit was at play. She spent a year there, chained, pained. And it was only when her condition deteriorated to an extent that incontinence set in, her family brought her to Gautam. “In 15 days, Hema started improving and, now a month later, she is normal,” he says. 

Businessman Sanjay of New Delhi, however, is still awaiting emancipation. Four years ago, he was diagnosed with mild mania. He was put on medication and his condition improved. But as soon as Sanjay stopped medication, the symptoms returned. Then, his father took him to Narhar Sharif dargah in Jhunjhunu district, Rajasthan. 
“For three months, I have been chained here. I want to go back home and meet my doctor, but my father is not allowing me,” he says. “My father has been convinced by people here that I can go only when I get orders from the dargah.” Taking me to be a patient's relative, Sanjay offers heart-felt advice: “Never bring anyone, under whatever circumstance, to the dargah.”

In the case of disorders like hysteria, a patient has a tendency to do whatever is suggested. Faith healers take advantage of it. Their sidekicks keep performing certain actions in front of the patient, who is likely to imitate the actions. The faith healers call this paishi or arzi, a process in which God talks to patients and heals them. 
Some others, especially schizophrenics, are treated cruelly. Some are whipped or caned, some are made to inhale smoke from burnt chilli, some have chilli paste smeared into their eyes and some get branded with red hot coins. “I recently got a patient whose burn was just 2mm away from his windpipe,” says Gautam. 
Despite laws banning the practice, many dargahs and temples keep patients chained. Some, for a lifetime. In 2001, a fire at a dargah in a coastal village, Erawadi, in Ramanathapuram district of Tamil Nadu charred to death 26 mental patients, who could not escape the blaze as they were chained. 
Soon after the incident, the Supreme Court directed the Centre to conduct an all-India survey to identify registered and unregistered asylums. The court also ordered that each state government should establish at least one mental health hospital. But even today, states like Haryana still do not have a government mental hospital.

The unwanted

Thanks to official sloth and societal apathy, families of mentally ill people are increasingly opting for the easy way out: ‘dumping'. 
A recent shocker came from Thrissur district in Kerala, where an illegal ‘asylum' was busted. Thirty-five men and six boys from across India were rescued from inhuman conditions. Apparently, it was the stench from their unwashed bodies and excreta that made neighbours alert the health department. 

As officials raided the asylum, they found naked and chained inmates, who had been dumped there by their families after paying the asylum owner. Some were found crawling in their excreta, some even consuming it. Their bodies bore marks of torture, and some had surgical scars on their backs, prompting allegations that the asylum had links with kidney thieves. Of 78 patients entered in the register, only 41 were found during the raid. 

An even more shocking trend is of patients getting dumped in jungles, especially in the forest reserves of south India. Families, mostly from the north, pay lorry drivers to ‘drop' these hapless victims, including children and women, in the forest ranges. Social activists in reserves such as Wayanad and Bandipur say drivers rape the female victims before dumping them at the mercy of nature.  

“Before we term the families as ‘cruel', we must look at what forces them to take such extreme steps,” says social activist Murugan S., who has lost count of the number of mentally ill people he has rescued from streets, railway stations and bus-stands across Kerala. And, finally, he concludes with what has become clichéd in Indian society: “The system needs a holistic change.”

with S. Neeraj Krishna

   

No country for cuckoos

17-MAY-2012

NEPAL : Since the Convention on the Rights of Persons with Disabilities (CRPD) came into force on May 3, 2008, it not only ensured the rights of persons with disabilities but it created lots of confusion and controversy in terms of implementing those rights in reality. In particular, it has been a constant battle for people who advocate for the rights of persons with mental and psychosocial disability, to convert those CRPD- guaranteed rights into the national policy framework.

The CRPD is a complex document. It took three years for me to understand its spirit and be convinced that it actually works to protect the rights of persons with mental or psychosocial disability. CRPD clearly defines people with disabilities as follows: “persons with disabilities include those who have long-term physical, mental, intellectual or sensory impairments which in interaction with various barriers may hinder their full and effective participation on an equal basis with others.”

It is clear that in contrary to the traditional notion of disability—whose understanding is limited only to physical impairments—the CRPD has endorsed mental or psychosocial disability as part of the broader disability groups. There are rights in the CRPD, but we are nonetheless failing to find ways to create an environment where such rights can be realised and enjoyed.

The CRPD is an international law. It is thus simply a tool of cumulative rights which forces a change in domestic laws in line with its human rights standard.  In the context of psychosocial disability rights, anti-discrimination, equality before law and the right to receive quality mental health services in the community are centrally important in both the CRPD and in Nepal. Besides this, there are other issues like quality life, education, and inclusion, which are also equally important. In addressing these major issues three bills are currently under discussion in Nepal. They are: disability bill, health bill, and mental health bill. Questions have been raised: where should the focus be in order to convert the rights guaranteed in the CRPD in the national policy framework?  Is it better to address rights by creating a separate mental health bill for those with psycho-social disabilities, or to include them in the health bill? Do we need a mental health bill to protect the rights of persons with psychosocial disabilities? Or is it better to split the rights between the health and disability bill instead?

To discuss these issues and give strategic direction to the government, on May 16, a couple of days ago there was a national consultation meeting hosted by the Nepal Mental Health Policy Group—a loose group of prominent politicians and policy makers who are seriously concerned with mental health and psychosocial disability issues. In the meeting, Indian scholar and activist, Bhargavi Davar, who herself is a childhood survivor of psychiatric institutions in India, made a presentation for senior bureaucrats, politicians and policy makers which forced them to ponder seriously about the advantages of not having a mental health bill to promote and protect the rights of persons with  psychosocial disabilities.

Her presentation on the mental health bill was quite interesting. Generally, the world over, people assume that it’s a great thing to have a separate mental health bill. Even in Nepal, we have already spent three years in negotiations to create a mental health bill in line with the CRPD. But, as pointed out by Davar, if we look at the world history of such bills, they are all formed in the same way that penal codes are formed. They mostly carry colonial baggage and are thus oppressive. It’s called a rights instrument, but it’s a ‘historical perversion’ that locks people up forcefully in mental ‘asylums’. Ironically, Nepal’s proposed mental health bill also reflects such a colonial mindset in the name of protecting rights and providing services.

Davar’s observation, that countries without a mental health bill are performing well, is true. In terms of community driven initiatives and other programmatic incentives—as opposed to institutionalisation— in meeting the needs of persons with psychosocial disabilities, a mental health bill, because of its inherent colonial roots, is counter-productive. In the Phillipines, such community-driven initiatives have been possible precisely because there is no legal documents which forces treatment to patients. In Nepal’s case as well, in absence of a mental health bill, we luckily do not have state-sponsored institutions to lock people up in and provide legally-approved forced treatment.

Considering the likeliness of the colonial baggage a mental health bill would carry in Nepal, and having considered the alternative of integrating mental health rights into the health and disability bills, we have begun to think that a separate bill won’t guarantee any more freedoms, but instead, take way from an individual’s right to choice. The right to choice, it must be remembered, is a fundamental human right and must be respected at all costs.

Even in terms of fighting stigma, offering mental health services at the community level, protecting rights and promoting integrated mental health services, is the best way forward. This can be done by distributing the rights guaranteed in the CRPD between health bill and disability bill in case of psycho-social disability and beyond. If we can ensure the inclusion of mental health service-related rights in the health bill, and can advocate to guarantee civil, political, cultural and social rights of people with psycho-social disability in the disability bill, a separate mental health bill seems entirely unnecessary.  This is the direction all stakeholders should now take. The Nepal Mental Health Policy Group has a huge task ahead of itself.

‘I was not ready to be friends with the mind that had spun tales’

A series on true experiences

INSANITY


 
THERE IS something glamorous about mental illness as portrayed in the movies. We like our heroes when they are down. Dirt, blood and wounds are testaments to bravery. There was something immensely lovable about Russell Crowe’s anguished stoicism in A Beautiful Mind.

Class XI was a tough time. I saw myself as a lonely and stigmatised (anti)hero. I too wanted to live on the edge. I too wanted to feel that life was glorious uncertainty. I too wanted to retreat into the dangerously comforting wonder worlds of my mind.

April 2010, at the age of 24, I got what I wanted: a first, brilliant brush with insanity that ended almost before it started. It made me feel transcendent and all-powerful, a formless energy that could crackle with joy forever.

I was happy at the university in New York, graduating in sociology, making plans for a new life, little realising that I was trying to escape myself. I was happy those two subsequent weeks in hospital, nibbling soulfully at my corn muffin and bouncing along happily on the trampolines that served as the wavelengths of my fellow inmates.

Then I woke up in the real world, looking into a cracked mirror. There were many cracked mirrors those days. A simpering, overweight stranger was looking back at me. Doubt came crashing in like an ocean. It wasn’t reality I’d left behind at the hospital. It was self-deception.

After doubt came depression. A sense that the world was against me, that my exile was written into the harsh pavement outside. By then I was back in Kolkata. Maimed and sick, I didn’t want to leave the prison of my childhood room. What did it matter when I couldn’t escape the confines of my mind? I dreamt of being born again, with the tremendous power I’d felt being manic.

I was an angel who’d lost his wings. I was a spirit imprisoned by flesh. I was an idea trapped in an infinite purgatory of tears. I wanted to escape.

With perverse slowness, things got better. That is, they got less bad. My first teaching job diverted me from my own mind. Putting on my game face for the world, I realised I was happy with a normal life. I was actually looking forward to this day when nothing would happen.

But then it did. June 2011, the second manic attack. I’d not known the power of such rage before. A parallel to the manic happiness, it was intoxicating. The worst — and the best — were the raw tears with which I said goodbye to a night that had kept me company while I lay awake for close to three weeks. Then I slept. I knew the groggy certainty of peace, of waking up to the security of warm, unchanging tomorrows. Routine, my best friend, returned.

Which was good. I wasn’t ready to be friends with the mind that had spun such fantastic tales to keep me happy and occupied through six years of boarding school. How could it have allowed me to do and say such stupid things? How could I’ve been so foolishly in love with myself, and, through this adoring self-centredness, with the world? I gathered the dark cloak of my misanthropy around me and retreated into my tower. Though, fortunately, not to brood.

Now I wish I’d never been manic. And I hate myself for wanting to emulate the tortured baby-faced handsomeness of Russell Crowe’s John Nash. I’ve changed fundamentally. I dislike people and then grow to like them. I suspect everyone of calculation and hidden motives, now that I’ve realised my wonderful world of purity was an illusion born of madness. I mistrust my better motives, generosity, love and an ability to listen — I blame them, wrongly, for my mania. I feel deformed and twisted. And I suspect that it is this aftermath, not the window of recurrence, that’s the hardest to jump across. I never want to be romantically involved with insanity.

Adreyo Sen is 26. He is a Kolkata-based blogger.

http://www.tehelka.com/story_main52.asp?filename=hub190512PERSONAL.asp#

Strengthening the Regulation and Monitoring of Clinical Trials : Three Member Committee Constituted to Examine Drug Approval Procedures

11-May, 2012

Ministry of Health and Family Welfare

In order to strengthen the regulation and monitoring of clinical trials in the country, the following measures have been taken by the Government: 

i. Twelve New Drug Advisory Committees (NDACs) and Six Medical Device Advisory Committees (MDACs) have been constituted to evaluate clinical trials proposals. These committees consist of leading experts from Central and State Government medical institutions. 

ii. A draft notification has been issued for incorporation of a new rule in the Drugs & Cosmetics Rules, 1945, which provides the following: 

a. Medical treatment and financial compensation to the trial subjects in case of trial related injury or death; 

b. Procedure for payment of financial compensation; 

c. Enhancement of responsibilities of Ethics Committee (EC), Sponsor & Investigator to ensure that financial compensation as well as medical care is provided to the trial subjects who suffer trial related injury or deaths and such information is provided to DCG(I). 

d. Amendment of the format for obtaining informed consent of trial subjects to include the details of address, occupation, annual income of the subject so as to have information regarding socio-economic status of the trial subjects. 

iii. All clinical trials, the permission for which have been granted by the office of DCG(I) on or after 15th June 2009, have to be mandatorily registered on the clinical trial registry at www.ctri.in of Indian Council of Medical Research (ICMR). 

iv. CDSCO has issued guidelines for conducting inspection of clinical trial sites and Sponsor/Clinical Research Organisations (CROs). 

This information was laid on the floor of the House in Lok Sabha today by the Union Minister for Health & Family Welfare Shri Ghulam Nabi Azad in response to a Starred question. 

SBS/sk 
(Release ID :83597)

Three Member Committee Constituted to Examine Drug Approval Procedures

Taking note of the 59th Report of the Parliamentary Standing Committee on the functioning of the Central Drugs Standard Control Organization (CDSCO), the Union Minister of Health and Family Welfare Shri Ghulam Nabi Azad has constituted a committee of three experts comprising Dr. V M Katoch, Secretary and DG, ICMR, Dr.P.N Tandon, President, National Brain Research Centre, Department of Biotechnology, Manesar and Dr S S Aggarwal, former Director, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow. 

The Committee has been asked to: 

(i) examine the validity of the scientific and statutory basis adopted for approval of new drugs without clinical trials. 

(ii) outline appropriate measures to bring about systemic improvements in the processing and grant of statutory approvals. 

(iii) suggest steps to institutionalise improvements in other procedural aspects of functioning of the CDSCO. 

The Committee has been asked to submit its report within a period of two months. 

The Parliamentary Standing Committee Report has, inter alia, made recommendations and observations on various aspects such as organisational structure and strength of CDSCO, approval of new drugs, banning of drugs, approval of fixed dose combinations, pharmacovigilance, spurious / sub-standard drugs, etc. The Report has also pointed out certain irregularities particularly in the area of approval of new drugs without clinical trials. 

SBS 
(Release ID :83596)

Change in method for mental health certificates

11-Apr-2012

LUCKNOW: The Chhatrapati Shahuji Maharaj Medical University has changed the procedure for awarding mental health certificates. The authorities were prompted to act, after they came to know that the certificates were to anyone and were literally being sold by certain office staff. The rot was exposed by an RTI query. According to information, mental health certificates issued by the department were being misused to settle property and personal disputes.

Later, the medical university lodged an FIR with the Wazirganj police station. Officials probing the case revealed that whosoever wanted a certificate had to simply buy an OPD ticket and get the certificate made from the department. Police officials said that as of now, they can cite only one example to prove the point, but they have at least 10 suspected cases in their hand.

The police has sought medical university's help in this regard. In their letter, the police has hinted on the existence of a bigger racket having the role of some insiders. Sources claimed that the police would take the help of hand writing and forensic experts to reach to the mastermind.

Chief medical superintendent, CSMMU, Prof SN Shankhwar however said that he was not aware of any such letter.

"The matter came to light in October 2011 and we had taken action against those involved. We had also changed the process of awarding mental health certificates to ensure that the incident never takes place again." As per the changes introduced, all OPD tickets contain that they are not meant for medico-legal purposes.

Abandoned by mother, child forced to stay in psychiatry institute

30-Apr-2012

Preetu Venugopalan Nair

PANAJI: Abandoned by his mother, a 15-year-old boy has nowhere to go and is forced to stay at the institute of psychiatry and human behavior (IPHB), as authorities at the state run home for children, Apna Ghar, are refusing to accept him.

The doctor treating the boy at IPHB certified him fit to be discharged almost a fortnight ago. The boy had been detected with conduct disorder and treated for this at IPHB.

Sources said Apna Ghar authorities are refusing to accept the child stating that conduct disorder is a "mental illness" and the boy should be kept at IPHB and not Apna Ghar. The doctor treating the boy has now written to CWC (South) stating that most Apna Ghar inmates show signs of conduct disorder and the child needs to be kept at Apna Ghar, not IPHB.

Confirming receiving the letter, CWC (South) chairperson Martha Mascarenhas said, "We are concerned about the boy's safety and welfare and are worried that if brought to Apna Ghar his situation may worsen. Also we have to look into the other children's safety. We are in talks with two homes in which to lodge the boy. In case he is not taken in by either of these homes, he will be brought back to Apna Ghar. We don't want the child to be troubled anymore."

She added, "I had met him in IPHB and the tears in his eyes shattered me. I don't want the child to continue staying with adults in IPHB. The child is special and he needs care and love." CWC looks into issues of children in need of care and shelter lodged in the state run home.

The minor was referred to IPHB after he, along with two other children, went on a rampage and vandalized the child welfare committee's (CWC) offices and the dormitory in February this year. The child was allegedly upset as he was kept in a separate room and not allowed to interact with other children in the home.

Psychiatrists said conduct disorder is a psychological problem diagnosed in childhood and juvenile delinquents. "Most of the children in Apna Ghar come to IPHB with such a problem," a psychiatrist at IPHB said.

CWC claims that on the psychiatrist's advice, they are trying to arrange some employment for the minor boy. "The doctors have said he needs to be occupied with some job so that it can bring in a change in his life and attitude. I have spoken to NGOs ARZ and SCAN to help the boy get a job," added Mascarenhas.

When contacted, ARZ representative Arun Pandey said, "This amounts to child labour. What the child requires is care and protection and not employment. He seems to be in a no man's land in the most child friendly state in India, with Apna Ghar and even NGOs neglecting him."

Our interest in the mentally ill is largely voyeuristic

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MANIA PHASE

'Our interest in the mentally ill is largely voyeuristic'

Anahita Mukherji | April 28, 2012


Mental illness is a rare theme for a first novel. And yet, this is precisely what writer and journalist Jerry Pinto has chosen to focus on in 'Em and The Big Hoom', an autobiographical novel about growing up with a mentally ill mother. The mother in the novel suffers from bipolar disorder, an illness characterised by phases of extreme depression and periods of mania. While she grapples to understand herself in her lucid moments, her husband and children find their lives revolving around her mood-swings, frequent suicide attempts and phases of madness. Pinto talks to TOI-Crest about how Indian society views the mentally ill.

Is there ever a completely normal day in the lives of those living with the mentally ill? During regular, normal, happy moments, is there a fear that this is simply the calm before the storm? 

At one level, while dealing with something like this, you are really trying to live in the moment. Philosophy tells us that what is gone is gone, you can't be sure of the future and so all you have is the present moment. On a theoretical level this is very easy to say, but as soon as you try and implement it, you find it near impossible. You know you only have this moment and so you must enjoy it. Yet if you're a diabetic, your way of enjoying yourself for the moment might mean eating a piece of cake, while you know what that could result in the next day. And so it's a constant negotiation of the past present and future. 

If you have an alcoholic father, there will be moments of tenderness but then you know there will be moments that trigger drinking outbursts. I don't think that living with a mentally ill person is very different from what many other families live through. Most families have a Sword of Damocles hanging over their head. That sword is love. If you don't love the person in distress, you can easily deal with alcoholism or cancer. It is when you love the person that you become vulnerable. 

Your book talks of how the periods of mania are awful, but the periods of depression are even worse. Could you comment on this? 

In both phases what is really painful is that you can do nothing but stand by and wait till it's over. In the mania phase, there is a complete breakdown of communication, where the person is listening to a script that comes from somewhere else. And depression is a solitary universe that encloses the person and cuts them off from you. You lose your loved one in both phases. 

During the mania you say: 'Why can't you just be depressed' and when the person is depressed, you say 'I promise I'll never hope for this. Just come back and start raging again'. You keep making promises to yourself, only to break them. 

What would you say to the family members of those who are mentally ill and who may well want to hide the patient in a closet? 

Would you hide someone who has diabetes or a thyroid problem? It's the same thing here - just a bunch of hormones and chemicals in your bloodstream that have gone wrong and cause things to misfire. The only way to de-stigmatise mental illness is to tell oneself constantly that it's as simple as having diabetes, though the symptoms may be more dramatic than diabetes. Everybody finds their own way to deal with the situation. It's a negotiation between rage, vulnerability and a feeling of 'Why me?' 

You've used the word 'mad' so many times in the novel? The mother in the novel calls herself mad. Why? 

Families have various ways of dealing with such situations. One such method involves confronting the problem and dragging it out in the open. Using the word 'madness' lightly and tossing it around is a way of trying to defang it and turn it into something ordinary, which it is not. This is a rather ironic way of dealing with the situation. Because it's said as a joke, it's also terribly serious. It's a turning point in one's life when a person says 'I am mad'. When Em (the mother in the novel) calls herself mad, she is challenging people to examine what they are saying about her. At some point in time, every one of us has felt that we are not in tune with the universe. 

While your novel shows how normal people with mental illness can fall in love or worry about a household, do you feel mental illness is dehumanised in India? The word 'paagal' is used to define a whole range of conditions. 

India is a hundred years behind the times in its discourse on mental health. Not long ago I saw a 14-year-old boy in a mental hospital because he was hyperactive in class and would hit fellow students. The boy said he was being administered electric shocks. When I questioned the nurse, she said his parents had agreed to it. 

People believe this is necessary to cure the patient. It's a case of conquering the illness but allowing the patient to die. This is not something that's happening only in small towns but in the country's largest metros. 

Psychiatric social workers in mental hospitals are found handling psychotropic drugs when they are not supposed to. And yet the argument is that there are so few trained psychiatrists in the country compared with the population of people who need treatment. There is no time to have therapy sessions with all those who need help and so shocks and pills are often used to cure the symptoms. 

In Indian society, the interest in a person with mental illness remains largely voyeuristic. In Bollywood, there's usually a comedy element to it;the mad man is shown jumping about, dancing by himself and talking to God. The other set of mentally ill patients are depicted as psychopaths and murders. This is really sad. In India it's easy to dehumanise anyone who is not like oneself - someone from another caste, religion or sexuality. 

The book talks about how during the mother's funeral, for the first time, the house is flooded with guests. Is this another fall-out of a disease like manic depression - that friends, relatives and neighbours don't drop by? 

While it's extremely uncomfortable for other people to visit, the person with the mental illness may have problems with other people around. In the depressive phase, the patient refuses to meet anyone. During the manic phases, it may be very disconcerting for other people to hear someone who is their mother's age talk about their sex life.